Week 4

So yesterday was week 4. All week I’ve been absolutely exhausted. Unsure If this is tsw or just that I’m genuinely tired. 1.30 comes along and my eyes are burning, feel out of breath and cant keep my eyes open.

I’m so so so much better at week 4 compared to what I was in this stage February this year. At that point in Feb I even cancelled a date as didnt want to be seen out looking the way I did. Couldnt smile, couldn’t open my mouth etc.. but at the minute I’m doing good. The red skin isnt as red, I can smile and I have no cracks on my mouth. Dont get me wrong it’s not perfect and still has crusty skin around my lips, itches like mad on a night time and often wakes me up it’s so itchy. But its baby steps and this is what’s needed for topical steroid withdrawal.

After a horrendous day yesterday me and mam sat and binge watched the widow (all 8 episodes) and had a girly night. Was lush.

I’ve been to the gym today and have a date tonight so life is good.

I’m also in talks with a local radio station to highlight tsw to try to help out with the #itsnoteczema campaign. Watch this space